Thyroidectomy – The recovery

It has been more than a month since the thyroidectomy. So far he is recovering well. The scar has healed nicely. Alhamdulillah.

I was reading the previous entry and I saw that I was supposed to write about the PCMC staycation. Haha! Lupa! Tak per lah, tak penting pun. To cut the story short, we spent the nights at the hospital with the patient. Pagi-pagi pergi sekolah and taska from the hospital and petang balik to the hospital. During the day, I was at the hospital being his personal nurse. Hehe! I was on the run. Phew! Penat tapi lega sebab semua orang depan mata. My mom offered to babysit but I politely declined. Lagipun Gee wanted the boys to be with us. Rindu katanya. Hehe we are clingy parents like that!

I guess the arrangement worked well for us. They behaved well throughout our stay and Gee also had me all the time (especially at night when he needs help with the pillows, to the toilet, to get water and stuff). So yeah, it was not bad at all despite being tired and sleep deprived.

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After the surgery, I can see that his eyes is “shrinking”. The eye balls are less bulging. When he sleeps, the right lid has closed completely (yay!). The left is still renggang but I think it’s much better than before. The doctor said it will take some time for the eyes to go back to the normal size but she also warned us not to be too berharap. The eyes could stay like that forever. Well, one can pray and wish.

I noticed that his voice is a little bit different now. I read that might be one of the effects of the surgery sebab the gland is located very very near to the vocal chord. Somehow or rather mesti ter usik jugak that area. We will have another appointment with the ENT to check if everything is ok.

I guess that’s it for the thyroidectomy series. We are done with his thyroid!Hip hip hooray!

This was taken after his first follow up with Dr Harjit a week after the surgery

Pictures are from my IG feed. Perhaps my followers might have seen it a few weeks back.

-Pu3-

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Post surgery

Alhamdulillah the surgery went well. We stayed in for 4 days and he’s currently resting at home. Will write more about his recovery and our staycation at PCMC soon. It was fun! Haha!

As for now, I’m back at office and work is piling. Don’t even know where to start. Yikes!

Here’s a (blurry) picture of him right after the surgery.

1 April 2014 | 3pm | PCMC | Ward 5G-03

1 April 2014 | 3pm | PCMC | Ward 5G-03

It’s now all over and done with. Let’s hope the eyes will shrink bit by bit as time goes by. I read that it will take time, some say it might never go to the original size. Whatever it may be, I’m just glad it’s never going to get any bigger.

He’s planning for a LASIK next. Hopefully before his birthday this year coz apparently the price is different for 35yo and above. Harap-harap the eyes are even qualified for a LASIK. We shall wait and see.

-Pu3-

 

Graves’ Disease

Here’s the story that led us to our surgery decision.

Dr Faridah has left PCMC. She gave us her new number should we decided to follow her to the new place. Or we could stay with PCMC and continue with the new doctor, Dr Shamin. At first, we were contemplating on where to go. Then we figured, tengok doctor baru macam mana dulu. If rasa tak ada chemistry, we will see Dr Faridah balik.

Seeing Dr Shamin was not a bad idea after all. She’s very informative and comforting as well. It’s a like a breath of fresh air to listen from someone else. Although the things that we hear from her are things that we already know. You know, second opinions usually give a different perspective.

Dr Shamin was worried of Gee’s eyes. He has the classic symptoms of Graves’ Disease.

Graves’ disease is an autoimmune disease. It most commonly affects the thyroid, frequently causing it to enlarge to twice its size or more (goiter), become overactive, with related hyperthyroid symptoms such as increased heartbeat, muscle weakness, disturbed sleep, and irritability. It can also affect the eyes, causing bulging eyes (exophthalmos). It affects other systems of the body, including the skin, heart, circulation and nervous system. (Source Wiki).

Gee’s thyroid illness has a name rupanya! It’s Graves’ Disease. It is not life threatening. Cuma the doctor is concern that the eye balls are starting to protrude. The nerve behind the eyes are pushing it forward. He can’t close his eyes completely. Yes, he sleeps with mata renggang (yang sangat renggang). Which sometimes scares me in the middle of the night as if he’s looking at me. Tapi sebenarnya dia tengah tidur. A normal person’s eyes should shut completely in order for it to “rest”. When the eyes are half-closed, it will cause dryness and in the long run could damage his cornea. Well, that scares us a little bit. He was referred to an eye specialist and alhamdulillah so far his eyes are ok.

That brought us to the next doctor. Dr Harjeet is the surgeon. She performed an ultrasound on Gee’s neck area and it looks like he doesn’t have an enlarged thyroid like the other thyroid patients. But again, the eyes. It all goes back to the eyes. The doctors do not want him to be dependent on Camazol for the rest of his life. The average person will be on the pills for a max of 5 years. Itupun untuk orang yang dah berumur and risky for surgery. Sepatutnya 18 bulan je boleh sembuh.

There are 2 types of treatments. One is radioactive. Two is surgery. Why not radioactive? Although it’s wayyyy cheaper (less than RM3K), there is no guarantee it will not come back. Plus, Gee needs to be quarantined for 2 weeks or more (until the radioactive traces are gone) from the kids. No contact AT ALL! He cringed at the idea of being away from us.

So we are left with surgery. A total thyroidectomy. It’s more expensive than radioactive. The surgeon will cut open his neck and remove the thyroid glands completely. The surgery will take about 2 hours or so. According to Dr Harjeet, she does this surgery all the time. I guess it’s kacang putih to her. But to us, surgery will always bring me to a state of panic, restless, over-thinking and mostly I feel helpless. All I do now is doa. Pray that everything will be ok. Just.okay.

Berharap dan berdoa the best for everyone. Amin.

T-4 days.

Tick tock tick tock.

-Pu3-

Surgery it is

Hubby will undergo a surgery to remove his thyroid gland. Doakan dia. Doakan kami. Will update more when I have the time. InsyaAllah.

Thyroid gland is that red butterfly-shaped thingy. That's the thing that will be removed.

Thyroid gland is that red butterfly-shaped thingy. That’s the thing that will be taken out completely.

The surgery is scheduled on 1 April 2014 at 11.00am. He is now on 2-week heavy dose of Camazol to ensure the T3 and T4 readings are at the right level on surgery day. To avoid complications katanya. *sigh*. I hate that word “complications”. Hope I will never have to hear it again.

I’m pretty much nervous (who wouldn’t?). But I just want this to be over soon. To just get it done and over with. To be healthy again.

Rabbi yassir wala tu’assir. Rabbi tamim bil khair.

P/S: Our house was sold at the “right” time. No wonder it was a long wait. Maybe this is what it was waiting for. Thank you Allah.

-Pu3-

Osteopathy treatment: The Gesret Method

Continuation from this entry.

We had our first appointment with Nicolas Grimaldi, the certified GESRET practitioner last Wednesday. Alhamdulillah IY cooperated well. I was worried that he will be all restless or even cry when treatment was done on him. Tapi he was behaving well on the table.

First, Nicolas had a series of questions of IY’s history. What kind of birth he had? How was he as a baby? Any reflux problem? Was he a normal or breech baby?

What is Osteopathy? Osteopaths is an alternative med-free treatment which diagnose and treat problems with muscles, ligaments, nerves and joints to help the body’s natural healing ability. And the method is called Gesret. Sekali pandang, it’s like Chiropractic. But it’s not. They believe that if our body is perfectly aligned, we will have a natural mechanism to menepis penyakit-penyakit ni. Bunyi macam tak real je kan? Oh well, ni satu cara usaha kami for our son. Yang lain we leave it to Allah. Dia lebih tahu apa yang terbaik untuk IY. I’m still learning about Gesret. Nak kena pahamkan lagi supaya bila treatment time I takde la blur bila di explain.

Ok back to the treatment. After the sesi soal jawab, Nicolas asked IY to lie down on the table. Pastu dia start luruskan kaki IY and ukur. Kaki IY panjang sebelah katanya. And the straightness of the kaki tak simetri. That’s because IY was a breech baby. He has clicky hips. Selama ni pernah dengar tapi tak sangka IY has it too. I sometimes forgot he was a breech baby. Dia tekan-tekan, kepak-kepak, tarik-tarik IY’s legs, spine, back, kepala etc sepanjang 45 minutes tu. Sekali sekala terdengar bunyi “pop pop” (macam bunyi kita “letupkan” jari). Memang seriau gak tapi seeing IY relax je, I know he’s not in pain. He was kinda enjoying it kot? Macam kena urut dia kata. Haha! Lagi satu dia excited sebab treatment table tu boleh auto naik turun pakai remote (macam katil hospital).

This picture taken in front he clinic

This picture was taken in front the clinic — it is not just for allergy. Macam-macam lagi. Even infertility.

Gesret Method is still not widely known in Malaysia. Me myself is still skeptical but I'm not losing hope

Gesret Method is still not widely known in Malaysia. Me myself is still skeptical but I’m not losing hope.

Curi-curi amik ni. Segan lagi sebab first time. HE was explaining to us each and very move he does to IY's body.

Curi-curi amik ni. Segan lagi sebab first time. He was explaining to us each and very move he does to IY’s body.

Next week is our second appointment. So far we are going for weekly treatments. After that if he progresses well, kita akan reduce sedikit demi sedikit. Depending on his natural ability to heal, it is an ongoing process. Kalau tulang-tulang tu lari balik and not aligned after some time, kena la pegi balik and align kan balik.

Before we went home, Nicolas taught us the right way to sleep (on our back, not tummy), and if nak mengiring, must be supported with the right pillow. He also pesan bila nak pakai baju, seluar, kasut, socks kena duduk (not berdiri sambil terhenjut-henjut macam main teng teng – which IY lovesssss to do). Dia kata kalau boleh cuba praktikkan the right posture supaya tak waste all the treatments dengan dia.

Nicolas can be found on FB. Search: Nicolas Grimaldi Osteopath KL. Banyak info available on his page. You can learn more there.

The bill was RM150. In case you are wondering.

-Pu3-

No surgery..for now

Eh lupa nak update about the 3 October thyroid appointment.

It went well. Buat blood test and turned out his T3 and T4 reading have gone down. Alhamdulillah no need for surgery for now. The meds dah turun dose from 3 biji to 2 biji now. That’s more like it. Yay! Dr Faridah pun memang nak avoid surgery as much as possible.

So what’s next? Appointments and more blood test next month macam biasa. To see how he will react with only 2 biji Camazol.

Hope to see more progress as time goes on.

-Pu3-

Allergic Rhinitis

IY has allergic rhinitis.

It’s been going on a few years now. When he was younger, he coughs at night. Bila nak tidur je dia start la batuk non stop sepanjang malam. After a few visits to the paeds, he was diagnosed with rhinitis. Right now he doesn’t cough much tapi he sneezes pulak! Especially in the morning after shower. Or during his swimming lessons, he will sneeze dalam pool and berlari dia naik to me nak lap hingus. His coach pun dah tegur tanya dia tak sihat ke? He thought IY’s having flu. I said no, he has sinus.

The boys take honey everyday as supplement. I was hoping that would relieve the symptoms tapi nampaknya IY’s condition is not getting any better. We bought the air fliter at home to clean the air, switch off the aircond at night and macam-macam jugak la usaha untuk make sure we eliminate the trigger factors. He used to depend a lot on anti-histamine meds which I don’t favour much. Tak suka la dia makan ubat banyak sangat. I have yet to take him to the ENT sebab I know the doctor is going to shove that camera thingy inside his nostrils (I’ve seen it during Gee’s sinus checkups). Kesian tau. Gee said that camera thingy is very uncomfortable. And since IY has started complaining that his nostril hurts when he blows his nose, lagi lah I hesitant nak bawak dia jumpa ENT.

I know IY got this from us. Gee ada asthma. I have asthma and eczema when I was a kid. I remember sneezing every morning masa nak pergi sekolah kecik-kecik dulu. I remember I rubbed my eyes sampai merah-merah sebab gatal. IY suka tonyoh hidung dia sebab dia kata gatal. Genetic lah ni. Z on the hand is healthy with mild eczema. His skin is not as smooth as. Suka menggaru bila panas. I pray Z tak de la sakit apa-apa yang lagi teruk dari itu.

Last week I saw a friend on IG who took her daughter to see an osteopathy practitioner. Her daughter has a severe case of eczema. I got intrigued to know more about this alternative treatment. It is said to be proven to help people with asthma, eczema, allergies, etc without drugs. I still haven’t grasp the idea of osteopathy treatment yet. Still tak paham. If you have any info please share. I’m still in doubt too. Tapi I think it might be worth the try.

I called and made the appointment. The clinic in Plaza Damas is called One Osteo clinic. Will blog more about this later after our visit next week. Until then, more research and googling for me. Keyword: OSTEOPATHY.

-Pu3-

Krik krik krik

Where have I been?

Rasa dah lama tak jot down stuff here. Like really really jotting down. Dunno if there’s still people reading. Ada la kot nampak je kat stats tu sekerat dua masuk jengok. Oh thank you, you. Masih sudi membaca.

I think soon I will write love letters to my sons in my blog. IY is almost reading now. Yang simple-simple dia dah boleh grasps the sound of the word. Cannot tipu him anymore (hehe!). He even peeks on my sms/whatsapp these days. “Mama tulis apa tu ada nama abang situ?” MasyaAllah, how much he has grown. I am at the stage where I need to explain everything in detail now. With facts and concrete evidence. Tak leh main hentam belasah je.

Thanks to Adni, things are much easier for me. He has the basics from school and we at home will just elaborate. Sometimes I just underestimate him. For example, he came back one day talking about the sun, the planets and the universe. Something we don’t really borak kosong at home, kan?

So maybe if I write something for him or something about him here, he will read it. And I hope later over the years I will have an easy teenage-years parenting stage (Wishful thinking! Since when parenting is EASY? At any stage!).

On a different update, I went for my HPV vaccination. Went to see Dr Seri after my miscarriage. Had my first jab then. Going for the second one tomorrow. Final dose will be in 6 months in April 2014. I have always wanted to do it knowing that it is important to be vaccinated. Walaupun sakit demam tu kalau Allah nak kasi, Dia kasi jugak, still kita usaha dan tawakal. Before this masa IY asyik tangguh je. Then I became pregnant of Z. Then I had to wait until I was done with breastfeeding baru boleh pulak. See how long that was? Sudah 5 tahun woi!

A little bit jealous dengan my sister who got it for free at school. How come my time dulu takde dapat free pun? Oh well, when was that? Entah-entah they haven’t even invented the vaccine masa tu. Tua dah kita. It’s been ages since I last left high school.

On another unrelated update, we are going on another trip. To UK! Weehoo! Will blog about that later lah when we are back. I’m more relaxed this time compared to the Istanbul trip. Dah pro dah travel dengan budak-budak ni. Cewah! Not! Or maybe because we are familiar with the places and the weather. Hope the weather will do kind to us. Autumn/winter-ish should be okay. But never underestimate the British weather. Soooo unpredictable. You can have 4 seasons in one day! No kidding!

I’m not really into the trip, yet. Belum full swing mode lagi. Mainly because my mind is on Gee’s surgery. Selagi tak settle ops dia, selagi tu hati tak keruan. Appointment lagi 3 hari. Dup dap dup dap jantung ni.

So okay that’s all for now. Until my next update (which I hope won’t be THAT long).

Toodles!

-Pu3-

Gee’s thyroid – 18 months later

It’s been almost 2 years since the first diagnosis.

We were at the doctor’s office last month for his monthly blood test. Dr Faridah is quite worried that Gee’s not responding well to Camazol (the name of the med) for the past 18 months. Gee has not missed a pill (kalau ada missed pun it won’t be more than 12 hours gap). His T3 and T4 reading sangat la yo-yo and not stable. It doesn’t show any sign of going constant.

She then moved on to suggesting alternative treatments. Apparently, this is a very stubborn thyroid (exactly her words). There’s 2 treatments to choose from; radioactive or surgery.

Next appointment is in a couple of weeks. By then , we will decide which way to go. We are leaning more towards surgery though. Doakan yang terbaik untuk kami ya? Thank you.

-Pu3-

Confinement after miscarriage

It’s been a week plus and I’m feeling much better now — physically. Emotionally — ok la jugak..sesekali teringat kat dia and jenguk luar tingkap backyard bila rindu.

It never crossed my mind that I needed to berpantang after my miscarriage. Luckily, ramai yang mengingatkan. Fuhh sangat ramai. Although no need to pantang like a real mommy yang beranak, I followed a few pantang regimes yang make sense lah (to me at least!).

1. Rest – of course this is my no one priority. I just sleep whenever I feel like it (albeit the boys being noisy and bugging me wanting this and that). Daddy layan their needs. Thank you sayang.

2. Food and drinks – No ice no cold stuff rules. I eat almost macam biasa but still being picky.

3. Jamu – I am not a jamu person. Never makan jamu when I had IY and Z. Tapi this time I decided nak give it a try. Tapi tak beli la the whole set. Just the necessary ones from Nona Roguy.

4. Bengkung – My uterus dah start mengembang although I was only 6w carrying the baby. I no longer bf Z so I had no natural mechanism to shrink it. So I braced myself to this! Sapu the Pati Halia cream and lilit myself with the traditional bengkung yang panjang tu. Alternate la dengan PB girdle and waist nipper. It felt good walaupun agak susah nak gerak and jalan macam robot. Tapi takde la pakai all the time macam pantang betul. Amik syarat je la.

The rest semua macam biasa. My life goes on as usual. I didn’t confine myself dalam rumah nor did I pakai socks sweater all the time. I couldn’t bring myself to do that. Boleh jadi meroyan stress kot I buat macam tu! And being stressed is a total no-no for me. So far I’m planning to do all of the above for about 2 weeks. Cukup la tu kan?

I was back in the office working after 6 days. Work is a good distraction. I don’t think much of it anymore. But of course, my baby is in my doa all the time.

One thing I wanted to do tapi belum berkesempatan is a body massage. Dapat full package pun sedap nih! InsyaAllah will do it soon.

-Pu3-